Texas Children's Cancer and Hematology Centers - page 15

The LongTerm Survivor Program has attracted a world-renowned
faculty involved in local, national and international research that
benefits today's pediatric cancer patients and future survivors.
The program sees patients with any childhood cancer diagnosis
who are at least two years after the completion of therapy.
A critically important focus of the Long Term Survivor Program
is to provide patient education about diagnosis, treatment and
potential risks (late effects) of prior cancer therapy. There is a
strong emphasis on ways to maintain and maximize good health
through discussions of diet, exercise, environmental exposure
and stress.
Comprehensive appointments include evaluation of the patient's
physical health as well as academic and social development.
Additionally, survivors are offered opportunities for enrollment
into clinical research trials if interested.
Passport for Care
®
Texas Children’s Cancer Center, through collaboration with
other researchers at Baylor College of Medicine,The Center for
Collaborative and Interactive Technologies and the Children’s
Oncology Group, has developed the Passport for Care (PFC).
PFC is an innovative and interactive internet-based tool for
survivors and their care providers that allows increased access
to the survivor’s medical information as well as accurate and
timely individualized health care guidelines for following long
term survivors.
PFC was developed in 2007 to address the health care needs of
the estimated 350,000 long term survivors of childhood cancer
in the United States. Individualized survivor educational resources
are customized to the needs of each patient based on his or her
disease and its treatment.
referrals
To make an appointment with the Long Term Survivor Program,
please call 832-822-4240. Appointments are made approximately
six to eight weeks in advance to provide ample time for a care
plan to be developed and appropriate screening appointments.
Patients and families can self-refer to the Long Term Survivor
Program directly.
Texas Children’s CanCerand hemaTology CenTers
longTerm survivor Program
The LongTerm Survivor Program, which currently follows approximately 1,800 long term survivors,
has an international reputation as a leader in assisting pediatric cancer patients and survivors.
txch.org/cancer-center/long-term-survivors
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